Welcome to all new members of Fight for a Future. Our goal is to raise money and support projects working to find a treament to stop/slow the progression of Duchenne/Becker Muscular Dystrophy, for THIS GENERATION OF CHILDREN. Advertising NOT related to DMD will be banned. Fight for a Future (FFF) represents parents, grandparents, family and friends of DMD/BMD. There are many research projects going on over the whole World. Most of the projects will need several years before they can help our children. Because nobody, not even the scientists, know how long this will take we will support any project working to find a drug to stop/slow the progression of DMD - TODAY. WE WILL NOT ALLOW THAT OUR CHILDREN HAVE TO WAIT FOR YEARS, WHILE THEIR BODY IS GETTING WEAKER AND WEAKER. WE DONâT HAVE TIME TO WAIT FOR "THE CURE". Treatments do exist, and that's GREAT. Our children are getting older and older. By physical therapy, nutriton, respiratory, cardiac and orthopedic care. These are all good and needed treaments. We are happy to get ideas - how to reach our goal . Your point of view - bad or good. ALL members are invited to share with us what's ever on your mind. This site has no censure in opinions. All posts are personal opinions and not endorsed by FFF unless identified as an FFF statement.For those who want to give ideas/messages "silent", write to FightforaFuture@groups.msn.com, or one of the leaders."When there is something wrong with the car - the television is black - the dishwasher stops, are we patient to those who is going to fix it ? Do we patently wait and say: "take your time." No, we don't. Some of you will perhaps say that this is not the same. Ok, agree. It's not the same. Our children are more important to us than a car, a television, a dishwasher." WE SHOULD BE MORE IMPATIENT ON BEHALF OF OUR CHILDREN Best wishes from FFF - Fight for a FutureThe Norwegian Campaign Tid For Livet (Time for Life) is working to raise money and support projects with the goal to help THIS generation of children. Projects working to find a drug to stop/slow progression of DMD/BMD.The Brazilian Association of Friends of DMD (AADM) Ribeirão Preto, São Paulo State, Brazil. Working together with the Muscular Dystrophy Research Center (CPDM). The center was built by AADM and is already working on investigating drugs that have been approved by the FDA for other diseases.
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DMD and Novel Flu Virus ProtectionDear All First of all i am glad to join you again at FFF in Multiply. I am watching the new flu virus H1N1 spreading all over the world right now. What about our children with B/DMD taking steroids? How can we protect them? I... more
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